Endometriosis Pelvic Pain Interdisciplinary Cohort Data Registry (EPPIC)

BC Women's Hospital & Health Centre

Status: Invitation-only

Conditions: Endometriosis

Treatments: Other: Data Registry

Study type: Observational

Funder types: Other

Identifiers

NCT02911090

H16-00264

Details and patient eligibility

About

The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.

Full description

The BC Women's Centre for Pelvic Pain and Endometriosis is the tertiary referral centre for endometriosis/pelvic pain in British Columbia, Canada. The Centre offers a unique interdisciplinary approach including minimally invasive surgery, hormonal and other medical therapy, pain education, physiotherapy, and CBT/mindfulness.

After informed consent, patients prospectively consent to data collection in the online registry. The registry consists of patient intake questionnaires (including validated measures), physical and ultrasound examination, review of medical records, surgical findings, and annual outcomes to 5 years.

The online data registry is housed in the Research Electronic Data Capture (REDCap) platform located at BC Children's Hospital.

Enrollment: 5,000 estimated patients

Sex: Female

Volunteers: No Healthy Volunteers

Inclusion criteria

• All new and re-referred patients at the BC Women's Centre for Pelvic Pain and Endometriosis.

Exclusion criteria

• Patients at the BC Women's Centre for Pelvic Pain and Endometriosis seen for reasons other than chronic pelvic pain and/ or endometriosis as well as patients who decline to complete the online questionnaire.