Epilepsy Impact Scale

Stanford University

Status: Completed

Conditions: Epilepsy

Treatments: Other: Interviews and questionnaires

Study type: Observational

Funder types: Other

Identifiers

NCT01833234

Stanford Epilepsy IRB 20523

Details and patient eligibility

About

The investigators are developing a questionnaire that can quickly measure the impact that epilepsy has on a person's life. This questionnaire will be useful in following whether the impact of epilepsy increases, decreases or stays the same over time. The results also may point out areas that would benefit from discussion or attention in visits with your doctor.

Full description

The investigators have used a set of broad open-ended questions about the impact of epilepsy on a person's life to formulate a long list of questions to characterize the impact the seizures, medications, and comorbidities that you are having. In the future, this will be boiled down to a short list of questions.

Enrollment: 51 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Age 18 or more.
2. Patient has had at least 1 seizure in the past 365 days.
3. Patient can speak and understand English.

Exclusion criteria

1. Patients suspected of having one of the imitators of epilepsy, for example, syncope, sleep disorder, psychogenic nonepileptic seizures, will be excluded, even if they also have epileptic seizures.
2. Patients unwilling to spend the time doing the questionnaire.

Trial design

51 participants in 1 patient group

People with epilepsy

Description:

People with epilepsy who have have had at least one seizure in the prior year.

Treatment:

Other: Interviews and questionnaires