Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis

N

National Center for Research Resources (NCRR)

Status

Completed

Conditions

Cystinosis

Study type

Observational

Funder types

Other
NIH

Identifiers

NCT00004312
UCSD-950338
UCSD-970026
NCRR-M01RR00827-1196

Details and patient eligibility

About

OBJECTIVES: I. Establish a computerized databank to monitor the progress of patients with cystinosis treated with cysteamine. II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.

Full description

PROTOCOL OUTLINE: Data are collected from patients and physicians. Information includes disease, treatment, family history, demographic, and physical exam data. The dates of kidney transplantation and/or dialysis initiation are also recorded.

Sex

All

Volunteers

No Healthy Volunteers

Inclusion and exclusion criteria

PROTOCOL ENTRY CRITERIA:

Nephropathic cystinosis diagnosis by white-cell cystine measurement, including infantile and late-onset forms

Trial contacts and locations

1

Loading...

Data sourced from clinicaltrials.gov

Clinical trials

Find clinical trialsTrials by location
© Copyright 2024 Veeva Systems