Evaluation of a Cohort of Patients With Ehlers-Danlos Syndrome Treated With Orthopedic Surgery (SED-eval)

Ramsay Générale de Santé

Status: Completed

Conditions: Ehlers-Danlos Syndrome

Treatments: Behavioral: A joint functional score based on the affected joint

Study type: Observational

Funder types: Other

Identifiers

NCT05137379

2020-A00808-31

Details and patient eligibility

About

The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.

Enrollment: 200 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches
• Patient with joint involvement of the shoulder treated by surgery
• Patient with ankle joint damage treated by surgery
• Patient with joint damage to the knee treated by surgery
• Patient with elbow joint damage treated by surgery
• Patient with joint involvement of the wrist treated by surgery
• Patient affiliated or beneficiary of a social security scheme
• Patient who has been informed of the research and does not object to the use of his data.

Exclusion criteria

• Patient objecting to the use of their data

Trial design

200 participants in 1 patient group

Elher-Danlos syndrome patients treated with orthopedic surgery

Treatment:

Behavioral: A joint functional score based on the affected joint