Evaluation of a Shared Decision Making Portal for Pediatric Asthma

Children's Hospital of Philadelphia (CHOP)

Status: Completed

Conditions: Asthma

Treatments: Other: MyAsthma Patient Portal

Study type: Interventional

Funder types: Other

Identifiers

NCT01715389

12-009407

Details and patient eligibility

About

This pilot intervention study will test the feasibility and acceptability and explore the outcomes of a primary care-based shared decision making (SDM) electronic medical record (EMR)-based portal that provides education, elicits and tracks patients/families' treatment concerns and goals, assesses symptoms and asthma control over time, and provides decision support to clinicians and families.

Enrollment: 81 patients

Sex: All

Ages: 6 to 12 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Parents/legal guardians of children aged 6-12 with persistent asthma, currently receiving chronic maintenance therapy, cared for at a study practice, with consistent access to a computer with an internet connection where they feel comfortable accessing MyChart (patient portal)
• Clinician at study site

Exclusion criteria

• parents non-english speaking
• child's primary care provider at the time of enrollment is a pediatric resident
• not meeting inclusion criteria

Trial design

Primary purpose: Treatment

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: None (Open label)

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81 participants in 2 patient groups

Intervention

Experimental group

Description:

Parents in the intervention group will use the MyAsthma Patient Portal to receive enhanced educational information on asthma and its treatment, identify concerns and goals related to asthma treatment, track progress toward goals and management of concerns monthly, and track asthma symptoms monthly. Clinicians seeing intervention families at office visits will have access to information from the portal including concerns, goals, progress toward goals, and tracking of asthma symptoms.

Treatment:

Other: MyAsthma Patient Portal

Control

No Intervention group

Description:

The control group will be signed up for MyChart but not use the MyAsthma Patient Portal. This group will be referred to asthma educational content on the CHOP website, complete study measures and otherwise, receive standard care.