Evaluation of Academic and Professional Trajectories of Narcoleptic Patients (NARCOWORK)
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Details and patient eligibility
About
Narcolepsy is a chronic, disabling condition characterized by excessive daytime sleepiness and, in some patients, falls in muscle tone related to emotions (cataplexies). It often begins in childhood or in young adults. Symptoms of narcolepsy are responsible for an important handicap in everyday life, and are often misunderstood by the family and professional environment. In addition, many comorbidities are associated with narcolepsy, such as depression, anxiety, or obesity.
Few studies have examined the impact of narcolepsy on patients' educational background, socio-professional integration, and quality of life. In particular, the factors of professional handicap related to the characteristics of the disease and the determinants of the insertion of the patients remain poorly known.
As a better understanding of these determinants could help to inform patients and guide them in their choices, NARCOWORK study aims at evaluating the academic and professional trajectories of a wide population of narcoleptic patients.
Enrollment
Sex
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Volunteers
Inclusion criteria
Group "Narcoleptic Patients":
- Type 1 or Type 2 narcolepsy
- > 18 years
- Usually followed at the Lyon Sleep Medicine Center
Group "Control":
- At least one member of each family of cases (siblings, cousins ...)
- > 18 years and of the same age as the case if possible (+/- 5 years)
- No narcolepsy
Exclusion criteria
- uncertain diagnosis (for the "Narcoleptic Patients" Group)
- poor knowledge of the French language
- Refusal to participate
Trial design
149 participants in 2 patient groups
Trial contacts and locations
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Data sourced from clinicaltrials.gov
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