Evaluation of the TRANSEND Program (EVATRANSEND)

Assistance Publique - Hôpitaux de Paris

Status: Completed

Conditions: Pediatric Patient Transfer to Adult Service:Transition Program

Treatments: Behavioral: survey

Study type: Observational

Funder types: Other

Identifiers

NCT04277286

IDRCB 2019-A02243-54 (Other Identifier)

APHP190984

Details and patient eligibility

About

"Transend" is a program designed to promote the transition of young patients with endocrine or metabolic diseases when they arrive in the adult sector at La Pitié-Salpétrière hospital. The main objective of the study is to compare the rate of patients lost to follow-up at 24 months after the transfer of pediatrics between the Transend group and the (historical) control group.

Full description

Adolescence and early adulthood represent important periods for young people suffering from chronic diseases. Several observational studies show needs not covered by care services at this period and significant lost to follow-up rates. "Transend" is a program designed to promote the transition of young patients with endocrine or metabolic diseases when they arrive in the adult sector at La Pitié-Salpétrière hospital (Paris, France). Since September 1, 2016, approximately 500 patients benefited from it.

Enrollment: 202 patients

Sex: All

Ages: 18 to 32 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient aged 18 to 32
• Patient with endocrine or metabolic disease
• Patient who had a follow-up in a pediatric department for his endocrine or metabolic disease
• Patient transferred to the adult sector in the endocrinology, metabolism or nutrition department of Pitié-Salpêtrière
• Patient who had a first post-transfer consultation between January 1, 2015 and September 1, 2017
• Patient with a social security protection

Exclusion criteria

• Patient who transferred to another adult service before being followed at Pitié-Salpêtrière
• Patient who has expressed his opposition to participate in this research

Trial design

202 participants in 2 patient groups

Experimental group

Description:

Patients transferred to adult service according to the Transend transition program (between September 2016 and January 2018)

Treatment:

Behavioral: survey

Control group

Description:

Patients transferred to adult service without a transition program, in the same center, before the implementation of Transend (between January 2015 and September 2016)

Treatment:

Behavioral: survey