Examination of the Relationship Between Quality of Life and Caregiving Burden Among Caregivers of Pediatric Oncology Patients

Fatma Beyza Akdeniz

Status: Not yet enrolling

Conditions: Caregiver Subjective Burden; Caregiver Anxiety; Childhood Cancers; Primary Caregivers of Children Newly Diagnosed With Cancer; Caregiver Health Related QOL; Childhood Cancer; Caregiver

Treatments: Behavioral: Assessment of caregiver quality of life and burden

Study type: Observational

Funder types: Other

Identifiers

NCT07308301

2024-KAEK-11

Details and patient eligibility

About

Primary Aim

The primary aim of this study is to determine the quality of life and caregiving burden levels of caregivers of pediatric oncology patients and to examine the relationship between these two variables.

Secondary Aims

To evaluate the differences between caregivers' sociodemographic characteristics (age, gender, education level, marital status, income level, etc.) and their quality of life.

To examine the differences between caregivers' sociodemographic characteristics and their caregiving burden levels.

To determine whether caregivers' quality of life and caregiving burden differ according to the diagnosis and treatment characteristics of pediatric oncology patients (duration of diagnosis, type of treatment, frequency of hospitalization, etc.).

Significance of the Study

Childhood cancer is a process that deeply affects not only the patient but also the family, particularly the caregivers. Family members who provide care for children often face intense physical, psychological, social, and economic burdens. These challenges reduce caregivers' quality of life and increase their caregiving burden.

Identifying the relationship between the quality of life and caregiving burden among caregivers of pediatric oncology patients is highly important in planning support services for families during the care process and in strengthening family-centered care practices by healthcare professionals.

The findings of this study will contribute to the development of family-centered approaches in nursing care, the design of psychosocial support programs, and a better understanding of caregivers' needs.

Enrollment: 95 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Being a family member who provides care for a child aged 0-18 years diagnosed with cancer
• The child being in the active treatment phase (chemotherapy, radiotherapy, post-surgical follow-up, etc.)
• Being able to read and write in Turkish and having sufficient literacy to complete the research questionnaire
• Willingness to participate in the study

Exclusion criteria

• Not being the primary caregiver of the child (serving only as a short-term companion)
• Being unable to complete the questionnaire due to a psychiatric diagnosis or communication difficulties
• The child having a disability

Trial design

95 participants in 1 patient group

Primary caregivers eighteen and older of hospitalized pediatric cancer patients will be included.

Description:

The study includes individuals who provide care for pediatric oncology patients. The research will involve primary caregivers aged 18 years or older who provide care for a child diagnosed with cancer and who are currently hospitalized in the Pediatric Hematology and Oncology Unit of Başakşehir Çam and Sakura City Hospital. The study will examine caregivers' sociodemographic characteristics, quality of life, and caregiving burden levels.

Treatment:

Behavioral: Assessment of caregiver quality of life and burden