Exploring Telehealth to Deliver Me & My Wishes During Coronavirus-19

Utah System of Higher Education (USHE)

Status: Completed

Conditions: Health Communication

Treatments: Behavioral: Me & My Wishes

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT05037448

I00111417

Details and patient eligibility

About

Due to Coronavirus-19, we are exploring the plausibility of delivering the Me & My Wishes intervention via telehealth.

Full description

Me & My Wishes are videos of nursing home residents talking about their preferences for care, including four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts. Knowing what residents want is essential to staff's ability to provide quality care and can inform family caregivers decision making especially in later stages of life as the resident's cognition declines-a time when family caregivers often feel unprepared. Persons with mild to moderate dementia can accurately express their everyday and end of life preferences, however, stereotypes persist about the decision making abilities of people with dementia that often prevent their involvement in conversations about care. The investigators propose to explore the feasibility of delivering Me & My Wishes via a telehealth platform.

Enrollment: 17 patients

Sex: All

Ages: 65+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Resident Inclusion Criteria:

• Identified as having Alzheimer's or related dementia
• Mild to moderate cognitive impairment (BIMS = 8-15, (MDS C0500) (nursing home residents only)
• Makes Self Understood = <1 (MDS B0700)/present in medical record
• Understood By Others = <1 (MDS B0800)/present in medical record
• Reside at the facility at least 2 weeks identified as a long-term resident
• Age >65 years
• Speaks English

Family Inclusion Criteria:

• Speaks English
• Willing and able to watch the videos
• Willing to complete short surveys. Being unable to attend care conference to view the video (e.g. due to distance) will not exclude family from participating.

Staff Inclusion Criteria:

• Speaks English
• Willing to watch the videos
• Willing to complete short surveys

Resident Exclusion Criteria:

• Limited communication capacity (e.g. aphasia)
• Comatose
• Cognitively intact
• Severe cognitive impairment

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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17 participants in 1 patient group

Telehealth

Other group

Description:

Me \& My Wishes videos communicate residents' preferences via personalized video recorded conversations. Me \& My Wishes are videos of nursing home residents talking about their preferences for care, and include four sections: About Me, Preferences for Today, Preferences for Medical Intervention and End of Life, and Afterthoughts.

Treatment:

Behavioral: Me & My Wishes