Family-Centered Songwriting in Pediatric Palliative Care
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Details and patient eligibility
About
This study evaluates the feasibility and efficacy of a family-centered songwriting intervention for cognitively-impaired children referred to a palliative care service.
Full description
Music-based interventions have previously been shown to reduce psychological distress in children with life-threatening conditions. However, children with cognitive impairment are frequently excluded from these studies. Our study will evaluate the efficacy a family-centered songwriting intervention for the following outcomes: child psychological and physical symptoms, parent psychological distress, and family environment.
Following recruitment, parent-child dyads will undergo 4 sessions with a licensed music therapist (anticipated to last 1 hour each). During these sessions, families and their children will select a song and engage in a songwriting process which includes various physiologic sounds from the child (i.e. heart rate, breathing). At the conclusion of these four sessions, a music DVD will be produced and delivered to the family.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- children ages 7-17 years
- cognitive impairment (T-score of 40 or below on the PROMIS Parent-Proxy Cognitive Function)
- receiving palliative/complex care
- progressively declining disease
- ability to hear.
- parents 18 years of age and older
- parent without cognitive impairment
- parent able to speak/understand English
Exclusion criteria
- None
Trial design
Primary purpose
Allocation
Interventional model
Masking
25 participants in 1 patient group
Trial contacts and locations
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Data sourced from clinicaltrials.gov
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