Feasibility Testing of a Hospice Family Caregiver Intervention to Improve Patient Dyspnea Care

Wayne State University

Status: Completed

Conditions: Dyspnea

Treatments: Behavioral: Shortness of breath recognition and treatment

Study type: Interventional

Funder types: Other

Identifiers

NCT02441868

RDOS-Family

Details and patient eligibility

About

This study is a pilot test of an intervention to train family caregivers of home hospice patients about recognizing and treating shortness of breath.

Full description

Shortness of breath is a prevalent symptom causing distress among patients at the end of life. In home hospice care family caregivers are expected to assist their family member with symptom management. This is often accomplished with little or no training.

The investigators have developed a bundle of training materials targeted for family caregivers of home hospice patients at risk for shortness of breath. The investigators will pilot test the intervention in this clinical trial. A future randomized clinical trial is planned and the evidence from this pilot will enhance the planning of that future trial.

Enrollment: 7 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient in home hospice care with an estimated survival of 3-4 weeks, at risk for dyspnea secondary to lung cancer, COPD, or heart failure.
• Family caregiver in patient's home must speak and read English.

Exclusion criteria

• Patients with bulbar ALS or quadriplegia.

Trial design

Primary purpose: Treatment

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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7 participants in 1 patient group

Intervention

Experimental group

Description:

all participants will receive the training

Treatment:

Behavioral: Shortness of breath recognition and treatment