HEalth Advocate for Liver Transplant - Pilot (HEAL-Tx Pilot)

University of California San Francisco (UCSF)

Status

Enrolling

Conditions

Liver Transplant; Complications

Pediatric ALL

Treatments

Behavioral: Health Advocate

Study type

Interventional

Funder types

Other

NIH

Identifiers

NCT05700799

K23DK132454 (U.S. NIH Grant/Contract)

22-36504

Details and patient eligibility

About

The Health Advocate for Liver Transplant (HEAL-Tx) Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for pediatric liver transplant patients and measure acceptability and feasibility according to RE-AIM.

Enrollment

10 estimated patients

Sex

All

Ages

Under 17 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Patients under 18 years if age that have undergone liver transplantation.
Subject and/or parent/legal guardian can provide written informed consent and willing to comply with study procedures.
Subject and/or parent/ legal guardian is willing to be contacted in the future by study staff.
Patient and/or caregiver felt to be a good fit for this pilot by transplant team.

Exclusion criteria

Caregiver unwilling or unable to complete the survey.
Child is a ward of the state (e.g. foster care) since present circumstances may not be reflective of child's past or future circumstances.
Non-English, non-Spanish speakers.
Non-US residents.
Greater than 18 years of age at the time of enrollment.