Hidradenitis Suppurativa Prospective Observational Registry and Biospecimen Repository (HS PROGRESS)

University of California San Francisco (UCSF)

Status: Enrolling

Conditions: Hidradenitis Suppurativa

Study type: Observational

Funder types: Other; Industry

Identifiers

NCT04115566

18-27002

Details and patient eligibility

About

Hidradenitis suppurativa (HS) is a common and debilitating skin disease that is poorly understood and understudied. As a result, little is known about disease prognosis and few effective treatments exist for this condition. This prospective observational cohort study aims to comprehensively characterize the clinical and biological features of HS. The results of this research will provide a basis for the development of an HS clinical classification system and identification of potential treatments for HS.

Enrollment: 3,000 estimated patients

Sex: All

Ages: 10+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Male or female ≥ 10 years of age
2. Diagnosis of HS by a dermatologist or practitioner experienced in making a diagnosis of HS
3. Written informed consent (and assent when applicable) obtained from subject or subject's legal representative and ability for subject to comply with the requirements of the study.

Exclusion criteria

1. Inability to give informed consent or unavailability of a parent/guardian who is able and willing to give informed consent.