Hospital Based Registry of Childhood Cancer in Pediatric Oncology Units in French Speaking Africa (RFAOP)

French Africa Pediatric Oncology Group

Status: Enrolling

Conditions: Pediatric Cancer

Study type: Observational

Funder types: Other

Identifiers

NCT03803735

GFAOP

Details and patient eligibility

About

The ultimate aim of this registry is to collect precise information concerning the children coming to oncology units working with the French African Oncology Group. This data will help to plan and provide correct pediatric oncology treatment and care for this population.

Collecting the data will give much needed information on numbers, stage, treatment and outcome. The register will give data for local and national health authorities in planning pediatric cancer programs.

Full description

This register is a registration of all children entering hospital based pediatric oncology units, working in selected hospitals in French speaking Africa. The data collected includes: demographic and socioeconomic status as well as clinical status and outcome.

The register also collects information on vital status, treatment abandonment and loss to follow-up.

Data, collected locally is entered on line using the Research Electronic Data Capture (REDCap) program. Data are stored under the responsibility of the IT department at Gustave ROUSSY in Paris- Villejuif.

Enrollment: 10,000 estimated patients

Sex: All

Ages: 1 day to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Any child presenting at any one of the participating units for treatment
2. Any child with any type of cancer
3. Any child or adolescent less than 18 years of age.

Exclusion criteria

1. No cancer found
2. Age greater than 18 years -