Impact of Motor and Oral Motor Function on Quality of Life in Children With SMA

Zeynep HOŞBAY

Status: Completed

Conditions: Spinal Muscular Atrophy Type I

Treatments: Other: Behavioral Pediatrics Feeding Assessment Scale; Other: Pediatric Quality of Life Inventory; Other: Neuro-sensory Motor Developmental Assessment; Other: Functional Oral Intake Scale

Study type: Observational

Funder types: Other

Identifiers

NCT06864767

Oral Motor Functions in SMA

Details and patient eligibility

About

The aim of this study is to investigate the impact of motor and oral motor functions on the quality of life in children aged 2-4 years diagnosed with Spinal Muscular Atrophy (SMA) Type I. In the study, the Neuro-Sensory-Motor Developmental Assessment (NSMDA) was used to evaluate motor functions, the Functional Oral Intake Scale (FOIS) to assess oral motor function, the Behavioral Pediatric Feeding Assessment Scale (BPFAS) to evaluate children's attitudes towards feeding, and the Pediatric Quality of Life Inventory (PedsQL) Neuromuscular Module to assess quality of life.

Enrollment: 23 patients

Sex: All

Ages: 2 to 4 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Diagnosed with Spinal Muscular Atrophy Type I
• Being between the ages of 2-4
• Families volunteering to participate in the study

Exclusion criteria

• Accompanied by another chronic disease other than SMA
• The mother or father has a cognitive problem that prevents them from expressing themselves
• The mother or father is illiterate