Implications for Quality of Life and Quality of Care in Patients With Hereditary Haemochromatosis

Universitaire Ziekenhuizen KU Leuven

Status: Withdrawn

Conditions: Hereditary Haemochromatosis

Treatments: Other: Interviews, questionaires, RAND-modified delphi method round

Study type: Observational

Funder types: Other

Identifiers

NCT01991925

UZL-INT-01

Details and patient eligibility

About

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital.

Full description

Patients with hereditary haemochromatosis will be interviewed/questioned about their Quality of life and the delivered quality of care in the hospital during follow-up

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• phase 1: experts in the field of haemochromatosis (hepatologists, hematologists, endocrinologists, general practitioner, nurses, ...)
• phase 2: patients with hereditary haemochromatosis, treatment with phlebotomy since 3 months, Dutch/English speaking

Exclusion criteria

• patients with secondary iron overload
• phlebotomy treatment less than 3 months
• language: no Dutch or English

Trial design

0 participants in 1 patient group

quality of life, quality of care

Description:

hereditary haemochromatosis patients

Treatment:

Other: Interviews, questionaires, RAND-modified delphi method round