Improving Care Coordination for Adolescents and Young Adults With Cancer

Wake Forest University (WFU)

Status: Completed

Conditions: Cancer

Treatments: Other: AYA NA-SB Questionnaire

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT04586127

P30CA012197 (U.S. NIH Grant/Contract)

IRB00068240

2T32CA122061 (U.S. NIH Grant/Contract)

P50CA244693 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The purpose of this research is to test an intervention designed to identify cancer needs and connect patients with services that address those needs. Participation in this research will involve completing 2 online surveys over the course of 1 month; each should take about 15 minutes to complete.

Full description

Adolescents and young Adults (AYA) Needs Assessment & Service Bridge (AYA NA-SB) includes a holistic Patient Reported Outcome Measures (PROM) assessing AYAs' physical, psychosocial and practical needs and a collection of referral pathways for connecting AYAs to services and resources based on the needs they report.

To assess the implementation of AYA NA-SB, the study team will pilot AYA NA-SB in the North Carolina Cancer Hospital (NCCH)/ UNC Children's Hospital, with a primary focus on implementation outcomes (i.e., feasibility, acceptability, appropriateness, fidelity). To establish proof-of-concept for AYA NA-SB, the study team will use pilot data to generate preliminary evidence on the extent to which AYA NA-SB addresses AYAs' reported needs.

Enrollment: 26 patients

Sex: All

Ages: 18 to 39 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• AYAs with cancer ages 18 through 39 currently undergoing cancer treatment at the North Carolina Cancer Hospital/ UNC Children's Hospital

Exclusion criteria

• Patients who decline to participate in the study

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

---

26 participants in 1 patient group

Adolescents and Young Adults Needs Assessment & Service Bridge (AYA NA-SB)

Experimental group

Description:

Subjects will complete 2 online surveys over the course of 1 month; each should take about 15 minutes to complete.

Treatment:

Other: AYA NA-SB Questionnaire