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Improving Participation of Autistic Children and Adolescents in the Habilitation Process (IMPAC)

R

Region Örebro County

Status

Invitation-only

Conditions

Autism Spectrum Disorders

Study type

Observational

Funder types

Other

Identifiers

NCT06381856
EPM_2024-00227-01

Details and patient eligibility

About

This project aims to explore the impact of a survey-based and a meeting-based needs assessment models on 7 to 17 year old autistic children's participation in the needs assessment process at the initial reception when enrolled at a Child and Youth Habilitation Centre.

Full description

The increasing number of children diagnosed with autism spectrum disorder (ASD) presents significant challenges for healthcare providers. Research emphasizes the importance of involving children in their healthcare decisions. However, due to the complex nature of ASD, characterized by differences in communication and social interaction, healthcare professionals struggle to adapt their services for these children.

To address this issue, the present study compares two assessment methods for children with ASD: one based on surveys and another based on meetings with healthcare professionals. In addition, supplementary information from the children's parents or guardians and healthcare providers will be gathered .

Data collection methods will include questionnaires, interviews, and analysis of individual habilitation plans. The goal is to recruit 120 children aged 7-17 diagnosed with ASD but without intellectual disabilities, with half undergoing the survey-based assessment and the other half undergoing the meeting-based assessment.

Enrollment

120 estimated patients

Sex

All

Ages

7 to 17 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

  • autism spectrum disorder

Exclusion criteria

  • intellectual disability

Trial design

120 participants in 2 patient groups

survey based needs assessment
Description:
cohort receiving survey based needs assessment
Personal meeting based assessment
Description:
cohort receiving personal meeting based needs assessment

Trial contacts and locations

1

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Central trial contact

Lars-Olov Lundqvist, Professor; Susann Arnell, PhD

Data sourced from clinicaltrials.gov

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