Informing American Muslims About Living Donation

The University of Chicago

Status: Completed

Conditions: Living Organ Donation

Treatments: Other: End of Life Care Workshop; Other: Organ Donation Workshop

Study type: Interventional

Funder types: Other

Identifiers

NCT04443114

IRB18-1378

Details and patient eligibility

About

The purpose of this projects is to test the effectiveness of a tailored educational intervention in increasing knowledge about organ donation among Muslim Americans. More specifically, using the theory of planned behavior (TPB) as a conceptual framework, the workshop's goal is to enhance attendee knowledge of the benefits and risks (behavioral beliefs and attitude), understanding of religious arguments for and against (normative beliefs and subjective norm), and procedural knowledge about the process and types of (control beliefs and perceived control) living organ donation.

Full description

The study consists of two workshops (control and experimental) and an optional follow-up interview.

The study contains 2 intervention arms based on the order in which the organ donation workshop is delivered at the mosque: early and late. The early arm will receive the experimental organ donation workshop first, followed by the control workshop (on end-of-life care). The late arm will receive the workshops in the opposite order (end-of-life care workshop followed by the organ donation workshop).

To address varied adult learning styles, the workshops will incorporate didactic teaching, moderated panel presentations, and facilitated small group discussions led by a trained peer educator. Workshops will also involve self-administered surveys.

Enrollment: 337 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Self-identified Muslim men and women
• Fluent in English
• Adult
• Availability to attend workshop sessions

Exclusion criteria

• No personal or immediate family history of organ transplant

Trial design

Primary purpose: Other

Allocation: Randomized

Interventional model: Crossover Assignment

Masking: None (Open label)

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337 participants in 2 patient groups

Early Arm

Other group

Description:

The early arm will receive the experimental organ donation workshop first, followed by the control workshop on end-of-life care.

Treatment:

Other: Organ Donation Workshop

Other: End of Life Care Workshop

Late Arm

Other group

Description:

The late arm will receive the control workshop on end-of-life care first, followed by the experimental organ donation workshop.

Treatment:

Other: Organ Donation Workshop

Other: End of Life Care Workshop