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The study design is an observational, longitudinal study with data collected online via a computer-assisted survey. Subjects will be recruited through non-probability snowball sampling.
Objectives:
Full description
In 2016, TASHRA conducted the first ever health survey of the U.S. kink community, examining issues of injuries, risky behavior, health status, and healthcare access and utilization, and patient satisfaction. It included measures of kink identity centrality, coming out, and kink community involvement as predictive factors.
The findings provided a broad map of possible health disparities in a manner that was intended to direct future research. As such, several included measures did not ask any further questions to collect more detail of the context of health disparities or injuries, or their impact on the participant.
The 2016 Kink Health Survey was an anonymous online survey that collected data from kink-involved people, from April 2016 to October 2016 (six month window). 1,118 individuals completed the survey. The results indicated the following (Sprott, Randall, Smith & Woo, 2021):
The following health disparities were noted:
The current proposal, the International Kink Health Survey, proposes to follow up and expand on the previous 2016 survey in the following ways:
The current proposed study will also address asexual people who engage in kink/BDSM behaviors (bondage, sadomasochism, and power exchange). The 2016 Kink Health Survey included this sexual orientation group, and we will continue to address this group.
The study design is an observational, longitudinal study with data collected online via a computer-assisted survey. Subjects will be recruited through non-probability snowball sampling. Interested individuals will initially be screened for inclusion criteria. All completed questionnaires will be reviewed to ascertain whether inclusion criteria are met or exclusion criteria are met. Those who meet the inclusion criteria will be sent a message asking them to read and sign the Informed Consent form if they wish to enroll in the study. Those who meet the exclusion criteria or who do not complete an Informed Consent form after 3 contacts will have their information on the screening questionnaire in Ripple de-identified. In order to characterize the prescreening sample for reporting purposes, the de-identified data will be retained and may be analyzed. If they provide their consent, prospective participants will be considered enrolled in the study and will be sent email invitations to fill out survey instrument 1, and then every week sent an email to fill out survey instrument 2, and so on, as appropriate.
IKHS Survey Instrument 1:
Demographics Kink Behaviors Kink Fantasies Kink/Sexual Desire
IKHS Survey Instrument 2:
Future Disclosure COVID
IKHS Survey Instrument 3:
Kink Injury
IKHS Survey Instrument 4:
Physical Health
IKHS Survey Instrument 5:
Mental Health
IKHS Survey Instrument 6:
Healthcare Utilization
IKHS Survey Instrument 7:
Sex Work Consent Violations Kink and Past Trauma Stigma Family Support Sexual Shame and Pride Scale
IKHS Survey Instrument 8:
Adverse Childhood Events / Sensation-Seeking Alcohol / Drug
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Inclusion criteria
Successful completion of screening checklist to indicate one of the following conditions:
Age of majority in the legal jurisdiction (geographic location) where the survey is taken (usually age 18)
English-language proficiency sufficient to understand the study instruments
Completion of an electronically signed and dated informed consent form
Exclusion criteria
People who respond "no" to the following question on the screening checklist
917 participants in 1 patient group
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Central trial contact
Anna M Randall, LCSW; Richard A Sprott, PhD
Data sourced from clinicaltrials.gov
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