Intimacy of Women With Cystic Fibrosis (IFAM)

Civil Hospices of Lyon

Status: Completed

Conditions: Mucoviscidosis

Treatments: Other: Intimate quality of life questionnaire

Study type: Observational

Funder types: Other

Identifiers

NCT04225962

2019-A01988-49 (Other Identifier)

69HCL19_0422

Details and patient eligibility

About

The intimate life of patients with cystic fibrosis has not been the subject of specific research, it is even left behind in favor of respiratory, digestive or endocrinological dysfunctions endangering these patients. After 16 years of practice, it is significant that this subject is problematic, painful but difficult to tackle; No doubt just as much on the side of caregivers: this question has never found its way into team exchanges, it seems to be evaded doubtless difficult or too intimate to welcome. These disorders arise from the effects of the disease on the health of the mucous epithelial tissues also located in the genital area. These difficulties are more closely approached by the difficulties of procreation; PMA allows them to get around them, nevertheless making it possible to be a parent, with the residual frustration of a satisfactory sex life: a deaf "addition", adding to many care constraints.

It is therefore in terms of sexual health and quality of sexual life that it is desirable to shed light on this aspect of cystic fibrosis in women.

Bibliographic research confirms this approach: this subject is not explored, the rare publications concern the vulnerability of the cervix or the difficulty on both sides of tackling this subject.

Enrollment: 211 patients

Sex: Female

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Major women with cystic fibrosis
• Tracked in the various CRCMs in France,
• Having or having had sexual intercourse,
• Having previously been informed of the aims and confidentiality of this research and not having opposed their participation.

Exclusion criteria

• Major women with cystic fibrosis whose state of health (acute episode of their disease or worsening phase) does not lend itself to such a collection
• Adult women with cystic fibrosis who are unable to receive the information and make a non-objection

Trial design

211 participants in 1 patient group

Women with cystic fibrosis

Description:

Women with cystic fibrosis

Treatment:

Other: Intimate quality of life questionnaire