Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis (TAK-IMPACT)

University of Edinburgh

Status: Enrolling

Conditions: Takayasu Arteritis; Takayasu Arteritis (TAK)

Treatments: Other: Questionnaire

Study type: Observational

Funder types: Other

Identifiers

NCT07351422

25-EMREC-064

Details and patient eligibility

About

This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.

Full description

This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients.

Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care.

Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition

Enrollment: 50 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

For the patient questionnaire:

• Age ≥ 18 years
• A formal diagnosis of TAK

For the physician questionnaire

• A physician involved in the management/decision-making for patients diagnosed with TAK

Exclusion criteria

For the patient questionnaire:

• Age < 18 years
• Lack of a formal diagnosis of TAK
• Patients without mental capacity or willingness to provide informed consent
• Not UK based

For the physician questionnaire

• Not involved in the management/ decision making for patients diagnosed with TAK
• Not willing to take part
• Not UK based

Trial design

50 participants in 2 patient groups

Patients with Takayasu Arteritis

Treatment:

Other: Questionnaire

Physicians Involved in the Management of Patients with Takayasu Arteritis

Treatment:

Other: Questionnaire