iParent2Parent Program for Parents of Children With Juvenile Idiopathic Arthritis (iPa2PaJIA)

The Hospital for Sick Children

Status: Completed

Conditions: JIA

Treatments: Behavioral: Waitlist Control; Behavioral: iParent2Parent Program

Study type: Interventional

Funder types: Other

Identifiers

NCT04168034

1000061063

Details and patient eligibility

About

The iParent2Parent program matches parents of children living with arthritis with a trained parent mentor who will provide parents of children newly diagnosed with arthritis: practical coping advice and social support through shared lived experiences. This study will compare two groups of parents: those who are in the iParent2Parent program and those in the control group (no mentor).

Full description

Parents/primary caregiver of children with JIA are an often overlooked but essential member of their child's health care team. They are responsible for managing their child's treatment program, and act as advocates for their child to support positive adaptation to JIA and to learn self-management skills for the disease. This is in the context of managing the financial, logistical, emotional, and social demands of parenting in general. Within pediatric tertiary care centres, peer-support programs for parents of children with JIA are often limited or difficult to access. The iParent2Parent Program aims to fill this gap in services by offering a program of trained parent peer mentors who can provide practical coping advice, foster adaptive problem solving, and provide social support via shared lived experience.

Enrollment: 6 patients

Sex: All

Ages: 18 to 100 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• English speaking caregiver of a child diagnosed with JIA according to ILAR criteria prior to their 18th birthday
• Access to computer capable of using free Skype software

Exclusion criteria

• Significant cognitive impairment or major co-morbid illness of parent that impeded ability to engage in program (e.g.; psychosis, active suicidal ideation, cognitive delays that would impact ability to participate and complete questionnaires.)

Trial design

Primary purpose: Treatment

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

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6 participants in 2 patient groups

Experimental: iParent2Parent Mentorship

Experimental group

Description:

10 sessions of 20-30 minute Skype video calls conducted over 2 to 3 months

Treatment:

Behavioral: iParent2Parent Program

Waitlist Control Group

Active Comparator group

Description:

The control group will receive standard care but without the iParent2Parent program

Treatment:

Behavioral: Waitlist Control