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Italian Network MDS Registry (FISM_registry)

F

Fondazione Italiana Sindromi Mielodisplastiche-ETS

Status

Enrolling

Conditions

Myelodysplastic-Myeloproliferative Diseases

Study type

Observational

Funder types

Other

Identifiers

NCT02808858
Rete italiana registri MDS

Details and patient eligibility

About

Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.

Full description

Development of an Italian regional registries MDS network using the same electronic case report form for data storage, with the following broad aims:

  • Ability to aggregate and process anonymous epidemiological data collected by individual regional registers;
  • Ability to aggregate the available data with those of other international registries existing.

Enrollment

10,000 estimated patients

Sex

All

Ages

18 to 106 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

  • New diagnosis of MDS

Exclusion criteria

  • Patient who refuse the signature of informed consent

Trial contacts and locations

20

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Central trial contact

Segreteria FISM; Valeria Santini, Prof.

Data sourced from clinicaltrials.gov

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