Life Quality Study for PFAPA Patient

Versailles Hospital

Status: Completed

Conditions: PFAPA Syndrome

Treatments: Other: Quality of life

Study type: Observational

Funder types: Other

Identifiers

NCT02811705

P15/13_PFAPA

Details and patient eligibility

About

This cohort study aims to assess the quality of life (or welfare) related to the health of children and adolescents with an non genetics auto-inflammatory disease PFAPA or Marshall syndrome to compare it to children or adolescents with recurrent fever genetics of Familial Mediterranean fever (FMF) in order to improve their overall care.

Enrollment: 60 patients

Sex: All

Ages: 2 to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• PFAPA syndrome patients or FMF patients

Exclusion criteria

• Participation refusal

Trial design

60 participants in 2 patient groups

PFAPA group

Description:

Life quality for PFAPA patient report by themselves or parent

Treatment:

Other: Quality of life

FMF group

Description:

Life quality for FMF patient report by themselves or parent

Treatment:

Other: Quality of life