Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis

M.D. Anderson Cancer Center

Status: Enrolling

Conditions: Mycosis Fungoides; Lymphomatoid Papulosis

Study type: Observational

Funder types: Other

Identifiers

NCT06207812

2023-0745

NCI-2024-00109 (Other Identifier)

Details and patient eligibility

About

To follow up with all our participants with juvenile-onset mycosis fungoides, check on their status, and ask them or their parents about long term outcomes associated with their condition.

Full description

Primary Objective -To characterize the long-term outcomes associated with juvenile-onset mycosis fungoides (jMF) and lymphomatoid papulosis (lyp). The study will consider metrics such as 5-year and 10-year overall survival, and overall disease activity.

Secondary objective

-To characterize treatments and associated comorbidities.

Enrollment: 100 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

-To be eligible, participants had to be diagnosed with jMF or lyp before age 20. In the case of participants below the age of 18, parents and not the children will be contacted for participation (children are exempt from participation as their parents may answer our study questions).

Exclusion criteria

-Participants older than 20 years of age at diagnosis