MEMORA-Caregiver : Risk Factors of Caregiver Burden Among Patients With Neurocognitive Disorders or Subjective Cognitive Complaint

Civil Hospices of Lyon

Status: Completed

Conditions: Neurocognitive Disorders

Study type: Observational

Funder types: Other

Identifiers

NCT02825732

69HCL16_0437

Details and patient eligibility

About

The investigators will investigate which patients' characteristics are associated with caregivers burden and its evolution for outpatients visiting a memory clinic, in particular how functional autonomy, behavioral and psychological symptoms as well as patients comorbidities can influence caregiver burden.

The study will be conducted among outpatients with progressive cognitive complaint followed in a Memory Clinic and their primary caregiver. The investigators hypothesis that caregivers experience a higher burden due to disease symptoms such as impairment of functional autonomy, behavioral and cognitive impairment, whatever the aetiology of the cognitive decline.

Enrollment: 1,300 patients

Sex: All

Ages: 50 to 100 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• patients with a cognitive complaint, either expressed by the patient or one of their relatives,
• patients at any stage of disease (cognitive complaint, mild cognitive impairment (MCI) or dementia),
• patients living in the community,
• patients having an informal caregiver who will complete the questionnaire to assess the caregiver burden.

Exclusion criteria