Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection

Technische Universität Dresden

Status: Enrolling

Conditions: VEXAS Syndrome

Study type: Observational

Funder types: Other; Industry

Identifiers

NCT06377462

VEXAS-Registry

Details and patient eligibility

About

The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers

Full description

see brief summary

Enrollment: 500 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome
• Age ≥18 years
• Signed informed consent form

Exclusion criteria

• patients who are not in a position to understand the nature and scope of participation in this register