Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

Klinikum Oldenburg gGmbH

Status: Enrolling

Conditions: Obesity; Craniopharyngioma

Study type: Observational

Funder types: Other

Identifiers

NCT04158284

KRANIOPHARYNGEOM Registry 2019

Details and patient eligibility

About

KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.

Enrollment: 90 estimated patients

Sex: All

Ages: 1 day to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Diagnosed with craniopharyngioma for the first time
2. Age at diagnosis 18 years or less of age
3. Agreement from patient's parents or legal guardian as well as the patient

Exclusion criteria

1. Age at diagnosis over 18 years of age
2. Diagnosis different from craniopharyngioma