Multidisciplinary Follow-up of Patients Treated for Malignant Hematological Disease

Aalborg University Hospital

Status: Unknown

Conditions: Malignant Hematologic Neoplasm

Study type: Observational

Funder types: Other

Identifiers

NCT03031106

TVO

Details and patient eligibility

About

The aim of this study is to adjust and test an existing internet-based tool for collecting patient-reported outcome measures and to use the internet-based tool in an multidisciplinary follow-up of patients treated for malignant hematological diseases. The patient-reported outcome measurements will be used in describing the patients' health-related quality of life (HRQoL) and to investigate whether the HRQol will increase due to participation in multidisciplinary follow-up.

Enrollment: 300 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• patients diagnosed with malignant hematological disease; Morbus Hodgkin and B- and T-cell disease
• patients followed before or after 1. line treatment
• patients in stable phase > 6 months after 1. line treatment
• the patients participation in the study must be assessed and decided by the doctor responsible for the patient's course of treatment

Exclusion criteria

• Health conditions which demands close medical monitoring
• conditions which compromise the ability to understand the study and submit informed consent (ex.: dementia and severe mental illness / disability)
• lack of capability to fill out electronic questionnaires
• poor self-care and/or compliance