Multiprofessional Advance Care Planning and Shared Decision Making for End of Life Care (MAPS)

University of Zurich (UZH)

Status: Completed

Conditions: Palliative Patients; Surrogate Decision Maker

Treatments: Other: Control Group; Other: Advance Care Planning ACP

Study type: Interventional

Funder types: Other

Identifiers

NCT01914848

MAPS Trial

Details and patient eligibility

About

Multiprofessional Advance Care Planning and shared decision making for end of live care for terminal patients and their relatives.

The aim of this study is to develop, implement and test a complex intervention for improving patients' preparation for and participation in end of life decisions. In cooperation with local, national and international partners, the investigators will focus on strategies to enhance advance care planning and shared decision making on end of life issues, and documentation and transferability of end of life decisions across health care settings in coordinated approach involving patients, their families and care givers (in and out of hospital).

Enrollment: 115 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion criteria: -patients in which the treating physician on the ward would not be surprised if the patient died during the next year (surprise question of Weissman et al 2011)

• male and female patients above 18 years of age
• signed informed consent after being informed
• patients able to appoint a surrogate decision maker (SM) and/or responsible physician to be contacted after discharge

Exclusion criteria: -patients not capable of speaking german

• patients having no responsible physician to be contacted after discharge and no relative/future surrogate decision maker (SM)
• inhouse patients being discharged within the next 2 days or ambulatory patients not regularly coming to the wards (at least every two month)
• patients assessed by their physician to be in obvious denial of their situation (illness/prognosis)

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Triple Blind

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115 participants in 2 patient groups

Control Group

Active Comparator group

Description:

A routine care discharge planning with the social service

Treatment:

Other: Control Group

Advance Care Planning ACP

Experimental group

Description:

Patient get a decision aid video and library and up to 3 consultations with qualified Advance Care Planning Facilitators. --------------------------------------------------------------------------------

Treatment:

Other: Advance Care Planning ACP