Myasthenia Gravis Foundation of America Global MG Patient Registry (MGFAPR)

Myasthenia Gravis Foundation of America

Status: Enrolling

Conditions: Myasthenia Gravis, Ocular; Myasthenia Gravis Crisis; Myasthenia Gravis, Thymectomy; Myasthenia Gravis, Adult Form; Myasthaenia Gravis; Myasthenia Gravis Generalised; Myasthenia Gravis; Myasthenia; Myasthenia Gravis with Exacerbation (Disorder); Myasthenia Gravis Exacerbations; Myasthenia Gravis, MuSK; Myasthenia Gravis Associated with Thymoma; Myasthenia Gravis, Generalized

Study type: Observational

Funder types: Other

Identifiers

NCT06617741

X130401004

Details and patient eligibility

About

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

• How and when are people with MG diagnosed?
• What are the most common symptoms associated with MG?
• What treatments are being used to treat MG?
• What are the impacts of MG on activities of daily living, employment and quality of life?
• What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Full description

This is a longitudinal, observational, patient reported registry.

Enrollment: 3,800 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• age over 18
• positive MG diagnosis

Exclusion criteria

• age under 18
• misdiagnosed with MG

Trial design

3,800 participants in 1 patient group

Participants

Description:

Those with Myasthenia Gravis