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The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
Full description
The purpose of this initiative is to improve care and outcomes for infants with HLHS by: 1) expanding the established NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, 2) improving implementation of consensus standards, tested by teams, into everyday practice across pediatric cardiology centers, and 3) engaging parents as partners in improving care and outcomes.
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1,000 participants in 1 patient group
There are currently no registered sites for this trial.
Central trial contact
Mark Timbers
Start date
May 01, 2016 • 8 years ago
Today
Jan 22, 2025
End date
May 01, 2026 • in 1 year and 3 months
Lead Sponsor
Data sourced from clinicaltrials.gov
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