Needs in Education for Pulmonary or Cardiopulmonary Transplanted Cystic Fibrosis Patients

Nantes University Hospital (NUH)

Status: Completed

Conditions: Cystic Fibrosis

Study type: Observational

Funder types: Other

Identifiers

NCT01285895

PROG/10/90

Details and patient eligibility

About

Main objective : This project aims to assess the educational needs of patients who received a lung transplantation or a simultaneous heart-lung transplantation for mucoviscidosis.

Specific objectives : Evaluate the specific needs dependent on seniority transplantation : 3 to 6 months, 6 months to 2 years, more than 2 years after transplantation

Secondary objectives :

• Assess the state of health

• Assess the knowledge

• Assess gestural know-how

• Assess the cognitive know-how

• Assess the behaviour adopted in reality by the patient

• Assess motivation psychosocial factors of :

  • self-efficacy and inefficiency
  • representation of obstacles, disadvantages of treatment
  • sense of control over their health
  • feeling of being supported by health professionals, by his close
  • representation of his responsibility to take care of his health, to follow his treatment, to be active about his treatment

Enrollment: 60 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients who received a lung transplantation or a simultaneous heart-lung transplantation for mucoviscidosis

Exclusion criteria

• Patient with a psychiatric disorder
• Patient in intensive care
• Palliative patient
• Patient aged under 18 years old
• Patient refusal