Neurofibromatosis Type 1 Patient Registry (NPRI)
Status
Conditions
Details and patient eligibility
About
The Neurofibromatosis Type 1 (NF1) Patient Registry Initiative (NPRI) is a web-based registry that asks participants to fill out a 30-minute online questionnaire to collect information about the spectrum of medical and social problems experienced by children and adults with NF1. The information gained from your participation may one day help doctors develop personalized treatments for individuals living with NF1.
We are currently enrolling individuals with NF1 who either (1) HAVE previously been diagnosed with a brain tumor younger than 18 years or (2) HAVE NEVER had a brain tumor. Please note: there is no therapy associated with this study. Individuals may participate in the registry by going to https://nf1registry.wustl.edu/
Enrollment
Sex
Volunteers
Inclusion criteria
- Individuals diagnosed by a healthcare provider with Neurofibromatosis Type 1
Exclusion criteria
- Individuals without a healthcare provider diagnosis of Neurofibromatosis Type 1
Trial contacts and locations
Loading...
Data sourced from clinicaltrials.gov
Clinical trials
Research sites
Resources
Legal