Nutrition Health Literacy of Cancer Patients and Their Support Networks. (NiiCproject)

NHS Trust

Status: Terminated

Conditions: Cancer; Nutrition Aspect of Cancer; Haematological Malignancy; Oncologic Disorders

Treatments: Other: Nominal consensus group; Other: Observational cohort (validity and reliability testing)

Study type: Observational

Funder types: Other

Identifiers

NCT03978312

18ON105

Details and patient eligibility

About

An exploration of the impact of nutrition literacy on ability of cancer patients and their support networks to get, understand and use nutrition information during cancer treatment.

Full description

The study is composed of two component projects:

Project A: Validation of a NLit tool for UK population.

NLit tool is a measurement tool developed at Kansas University to measure nutrition health literacy. It assesses the following functional literacy skills: numeracy & literacy and the following nutrition knowledge fields: macronutrients, food labels, portion sizes, food groups and consumer skills.

This project has two phases:

Phase A: Nominal consensus groups x 2 - consumer adaptation and tool review for UK use and pilot testing of electronic tool.

Phase B: Testing adapted tool in a group of cancer patients for statistical validation.

Project B: Planned survey of people with cancer and their families to explore experiences of access to nutrition information

This survey is a combination of validated and unvalidated questions built on models of nutrition health literacy. With validated fields being used to evaluate and understand responses to unvalidated questions.

It explores access to nutrition information, self-efficacy, confidence, health care infrastructure and support with nutrition information, population demographics, food security, sources of nutrition information, perceived practical skills and knowledge base.

Enrollment: 58 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

NLit-UK development

Inclusion Criteria:

• Members of the public (carers, health service users, lay persons)
• Cancer patients with confirmed diagnosis
• Friends or family members supporting a patient with a confirmed diagnosis of cancer
• > 18 yrs old
• Received cancer treatment at Nottingham University Hospitals between Jan 15 and March 20

Exclusion Criteria:

• Paediatrics < 18yrs at the time of diagnosis and treatment
• Unconfirmed diagnosis of cancer
• Patients on watch and wait