Online Educational Tool for Caregivers of Pediatric Oncology Patients

The Washington University

Status: Completed

Conditions: Caregiver Burden; Care Giving Burden; Pediatric Cancer

Treatments: Behavioral: OncoWhiz

Study type: Interventional

Funder types: Other

Identifiers

NCT05616572

202207059

Details and patient eligibility

About

The goal of this study is to assess the feasibility of using a game-based tool for caregivers of pediatric oncology patients to increase caregiver knowledge about supportive care for oncology patients while simultaneously reducing caregiver anxiety.

Enrollment: 30 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Caregiver of a pediatric cancer patient who was recently diagnosed with cancer, including all pediatric malignancies. Multiple caregivers can be enrolled. Caregiver is defined as a person who is responsible for the direct care, protection, and supervision of the pediatric cancer patient. In this context, a caregiver is not required to be the parent or legal guardian.

• Caregivers must have completed oncology nursing education either in the inpatient or outpatient setting.

  • Inpatient setting: Before discharge from hospital after nursing education
  • Outpatient setting: Within 15 days of discharge from the inpatient setting after nursing education or within 21 days of nursing education if diagnosis made in the outpatient setting

Exclusion criteria

• If less than 18 years of age
• Unable to utilize the electronic tool, complete the pre/post questionnaires and anxiety scale due to reading abilities, intellectual or physical disabilities.
• Cared for another child with cancer or secondary diagnosis

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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30 participants in 1 patient group

Caregiver

Experimental group

Description:

After consent, the study visit will occur. The study visit will consist of a brief set of demographic questions and a pre-game play knowledge assessment and anxiety assessment, followed by completion of the OncoWhiz game. Immediately after utilizing OncoWhiz, the participant will complete a knowledge assessment and anxiety assessment, in addition to a satisfaction survey.

Treatment:

Behavioral: OncoWhiz