Our Care Wishes - Dementia

University of Pennsylvania

Status: Completed

Conditions: Alzheimer Disease; Memory Impairment; Dementia

Treatments: Other: Our Memory Care Wishes

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT05033262

P30AG064105-01 (U.S. NIH Grant/Contract)

834878

Details and patient eligibility

About

This Our Care Wishes- Dementia pilot study is adapting an existing successful online advance care planning platform to the specific needs of persons living with dementia and shared decision-makers (SDMs) and testing the usability and acceptability among nursing home residents and SDMs.

Enrollment: 14 patients

Sex: All

Ages: 21+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Eligible PLWD will be receiving short-or long-term care at a participating NH, have documented moderate to severe cognitive impairment as measured by the Cognitive Function Scale included in the Minimum Data Set 3.0, 65 and have an identified SDM.

Exclusion criteria

• Participants are not eligible discharged from participating NHs, or do not have access to a telephone or video chat.

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Double Blind

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14 participants in 2 patient groups

Control

No Intervention group

Description:

Participants who are allocated to the control arm will complete baseline measures and then receive usual advanced care planning care and discussions with the nursing facility staff. Control arm participants will not review the Our Memory Care Wishes website. Participants will complete follow up measures one week after the baseline interview.

Intervention

Experimental group

Description:

Participants allocated to the intervention group will complete baseline measures. Then, the participant will review the Our Memory Care Wishes website and enter advanced care planning decisions and preferences into the website. Participants will complete follow up measures one week after the baseline interview. Participants receiving the intervention will complete additional follow up measures which include surveys measuring the ease of use of the website.

Treatment:

Other: Our Memory Care Wishes