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After informed consent, participants will be asked to complete a medical/family history questionnaire and provide a blood sample. Some participants may also be asked to provide a urine sample. Individuals undergoing procedures that require collection of biological samples for clinical purposes may have these samples saved for research purposes. Participants will also be asked for their permission for study investigators to access medical records and/or recontact them for updates to their medical and family histories. Data and biospecimens will be stored for potential future research projects.
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10,000 participants in 2 patient groups
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Central trial contact
Beth Dudley, MS, MPH, CGC; Randall E Brand, MD
Data sourced from clinicaltrials.gov
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