Parents' Experience of Child Loss During Pregnancy or Birth

Fritz Sterr

Status: Enrolling

Conditions: Experience; Stillbirth and Fetal Death; Miscarriages

Treatments: Other: Focus group interviews; Other: Narrative interviews; Other: Workshops; Other: Delphi approach

Study type: Observational

Funder types: Other

Identifiers

NCT06771661

GEHBa-202409-V-237-R2

Details and patient eligibility

About

The investigators are conducting a participatory study with and for parents after child loss during pregnancy or birth. Their aim is to develop treatment recommendations for healthcare professional. These focus on question, how to deal with parents when experiencing child loss.

Full description

The entire study is following a participatory approach and including parents after stillbirth in the research team. Along a co-creative design, the investigators planned a multistep-explorative mixed-methods study.

In detail, three key steps will be conducted. First, workshops and focus groups will be carried out to identify central needs of affected parents. Afterwards, one investigator will interview the parents narratively to gain an in-depth understanding of their experiencs. Finally, these findings will be summarized and translated into treatment recommendations for healthcare professionals.

Enrollment: 50 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• German speaking
• Living in Austria, Germany or Switzerland
• Child loss during pregnancy or birth
• Child loss within last 12 months
• Legal capacity
• Voluntary participation

Exclusion criteria

• Loss of child after birth
• Not speaking and understanding German
• Not in a good mental condition to participate

Trial design

50 participants in 1 patient group

Parents after intrauterine or perinatal child loss

Treatment:

Other: Delphi approach

Other: Workshops

Other: Narrative interviews

Other: Focus group interviews