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Patient Empowerment With the Patient Perspective (PEPP)

S

Sahlgrenska University Hospital

Status

Completed

Conditions

Colorectal Cancer

Treatments

Other: No intervention

Study type

Observational

Funder types

Other

Identifiers

Details and patient eligibility

About

The overall aim with this study is to gain a deeper understanding of patient perceptions regarding empowerment in relation to a health platform.

Full description

This is a two-stage study design. The first stage consists of focus groups interviews. Three focus groups with 6-8 patients (colorectal cancer patients diagnosed at least one year ago) in each group, will be invited. The focus group interviews will be moderated by one researcher, but accompanied with a second observing researcher. The participants will be identified using the regional Swedish ColoRectal Cancer Registry in Västra Götaland. The participants will be contacted by a short letter (appendix) indicating that we will call them with more information. The participants will by phone be asked to participate in the study and then invited to the focus groups.

The second phase of the project includes a questionnaire, which will be sent to 200 patients from the same population. The questionnaires will be delivered by using the Sunet Survey system, which is a system approved by University of Gothenburg. If the participants prefers a paper copy, or lack the possibility to reply online, a paper copy will be send via mail instead.

At this moment the investigators have developed a questionnaire, which may be refined due to the understating achieved from the focus group interviews.

Enrollment

200 patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

  • Patient with colorectal cancer

Exclusion criteria

  • Inability to give informed consent or speaking and reading the Swedish language.

Trial contacts and locations

1

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Data sourced from clinicaltrials.gov

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