Patient Perceptions Around Quality of Care Through Telemedicine in Neuro-Oncology

M.D. Anderson Cancer Center

Status

Enrolling

Conditions

Primary Brain Neoplasm

Metastatic Malignant Neoplasm in the Brain

Leptomeningeal Neoplasm

Central Nervous System Neoplasm

Treatments

Other: Survey Administration

Other: Electronic Health Record Review

Study type

Observational

Funder types

Other

Identifiers

NCT04988009

2020-0493 (Other Identifier)

NCI-2020-07493 (Registry Identifier)

Details and patient eligibility

About

This study evaluates patient perceptions around quality of care through telemedicine in neuro-oncology. Studying questionnaires related to perceptions quality of care through telemedicine in patients with brain cancer may help doctors to improve the delivery of care through this modality.

Full description

PRIMARY OBJECTIVE:

I. To evaluate the patient-perceived quality of care by group (telemedicine versus in-person visits) in patients with central nervous system (CNS) cancer.

SECONDARY OBJECTIVES:

I. To characterize the visits provided by telemedicine compared to those in-person.

II. To contrast the average time spent on telemedicine visits compared to in-person visits, and the delay between visit order placement and visit occurring.

III. To evaluate the domains of patient care addressed on a telemedicine visit versus in-person visit per documentation, including (1) treatment planning, (2) symptom burden, (3) goals of care.

IV. To evaluate frequency of acute care sought (through emergency room or urgent care clinic) within 30 days of encounter in telemedicine visit versus (vs) in-person visit.

V. The impact of patient and clinical characteristics on perceived quality of care in the context of covariate-adjusted modeling.

OUTLINE:

Patients complete a survey related to their perceived quality of care via telephone and have their medical chart reviewed prospectively.

Enrollment

200 estimated patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Patients with a CNS tumors: this includes patients with primary brain tumors, brain metastases, and leptomeningeal disease
Established patients with a follow up encounter with Neuro-Oncology at the Brain and Spine Center at the University of Texas MD Anderson Cancer Center; this encounter can be
- An in-person visit
- A telemedicine appointment

Exclusion criteria

Encounter occurred with the assistance of official language translation support
Patients with telephone encounters (without interactive video)
New patient or consult visits
Neither patient nor caregiver present during the visit are available or able to answer survey questions