Patient Recall of Cancer Screening and Diagnosis

Case Comprehensive Cancer Center (Case CCC)

Status: Enrolling

Conditions: Breast Cancer; Prostate Cancer

Treatments: Other: Accessing personal medical records online via online portals

Study type: Interventional

Funder types: Other

Identifiers

NCT05014295

CASE1Z21

Details and patient eligibility

About

The purpose of this research is to try to better understand how much information relating to cancer screening and diagnoses that people can recall on their own and to better understand how to help people get better information. In this study, investigators will see if giving time or other resources help individuals remember more and more accurate details about their cancer screening and care.

Full description

This is a randomized controlled trial of an intervention to encourage use of online medical records for filling out a cancer screening, diagnosis and treatment questionnaire. Participants will be asked to self-report on cancer screening and treatment. They will then be asked the same questions again a week later.

The control group will have had one week to reflect on the questions, and investigators anticipate some influence of this on responses. The intervention group will be prompted about accessing their medical records from the major local health systems online, with links to directions provided by each hospital system. They will then be asked to fill out the same questionnaire.

Enrollment: 100 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• diagnosed with breast or prostate cancer within the last 10 years
• have access to the internet with a working email address
• reside in Northeast Ohio

Exclusion criteria

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: None (Open label)

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100 participants in 2 patient groups

Control Group

No Intervention group

Description:

Survey questions at baseline and at one week. The control group will have had one week to reflect on the questions, and investigators anticipate some influence of this on responses.

Intervention Group

Active Comparator group

Description:

The intervention group will be prompted about accessing their medical records from the major local health systems online, with links to directions provided by each hospital system. They will then be asked to fill out the same questionnaire.

Treatment:

Other: Accessing personal medical records online via online portals