Peer Mentoring in Promoting Follow-up Care Self-Management in Younger Childhood Cancer Survivors

Rutgers The State University of New Jersey

Status: Completed

Conditions: Cancer Survivor

Treatments: Other: Questionnaire Administration; Behavioral: Telephone-Based Intervention

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT02699996

Pro20150001955

P30CA072720 (U.S. NIH Grant/Contract)

NCI-2015-02098 (Registry Identifier)

131507

Details and patient eligibility

About

This pilot trial studies a peer mentoring and online self-management program to see how well it works in promoting follow-up care self-management in younger childhood cancer survivors. Childhood cancer survivors require lifelong follow-up care to identify, monitor, and treat medical and psychosocial late effects stemming from their cancer, its treatment, and lifestyle factors. A peer mentoring program + self-management may improve disease knowledge, health motivation, problem-solving skills, stress management, and communication with caregivers and providers in adolescent and young adult cancer survivors.

Full description

PRIMARY OBJECTIVES:

I. Evaluate the feasibility of the self-management + peer mentoring program in a pilot trial.

II. Assess preliminary outcomes of the peer mentoring program.

OUTLINE:

All Participants will be asked to complete online self-management educational modules and 6 weekly peer mentor calls to facilitate engagement with the online modules and offer specialized support. We will also recruit and train peer Mentors.

Enrollment: 31 patients

Sex: All

Ages: 18 to 29 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

PEER MENTOR ELIGIBILITY:

• Age 21-29
• At least 1.5 years from treatment
• Self-reported primary responsibility for care and "complete readiness" using the Readiness for Transition Questionnaire

PATIENT ELIGIBILITY:

• Age 18-25
• At least 1.5 years from treatment
• Currently does not independently self-manage follow-up care according to self-report to assume total responsibility for care (i.e., reports low readiness [score of 1 or 2 out of 4] OR scores <3 on any of the 10-item responsibility scale from the Readiness for Transition Questionnaire)

Exclusion criteria

PATIENT EXCLUSION CRITERIA: Physician- or self-reported cognitive delay or impairment that would prevent self-management of healthcare

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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31 participants in 1 patient group

self-management + peer mentoring

Experimental group

Description:

Participants complete the self-management + peer mentoring intervention comprising 5 online educational modules and 6 videoconference or phone calls with the peer mentor.

Treatment:

Other: Questionnaire Administration

Behavioral: Telephone-Based Intervention