Peer Support Groups for Families With an Infant in the NICU

Oregon Health & Science University (OHSU)

Status: Invitation-only

Conditions: Anxiety; Stress

Treatments: Behavioral: Participant guided peer support gathering

Study type: Observational

Funder types: Other

Identifiers

NCT05988996

STUDY00025682

Details and patient eligibility

About

The goal of this observational study is to learn the impact of race, ethnicity, and language matched peer support groups on parental stress, anxiety, and sense of belonging for families who have or have had an infant hospitalized in the Neonatal Intensive Care Unit (NICU). The main questions aim to answer: Do race, ethnicity, and language matched peer support groups decrease parental stress and anxiety and improve sense of belonging of parents while their baby is hospitalized in the NICU? And, are there any changes that should be made to the format of the peer support group sessions?

Participants will be invited to attend a peer support group that is matched for race, ethnicity, and language. Participants will have the option of filling out a survey on stress, anxiety, and sense of belonging before and after the peer group session. Additionally, participants will have the option of filling out a satisfaction survey after the peer group session.

Full description

The study will be observational research wherein participants who want to attend a peer support group, will have the option of filling out surveys before and after peer support group attendance. Surveys are voluntary and the only way of assessing the behavioral outcome (impact on parental stress, anxiety, and sense of belonging); families can attend the peer support groups even if the family member does not want to participate in the survey.

Enrollment: 100 estimated patients

Sex: All

Ages: 18 to 70 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Parental or guardian self-identified as Black, African American, African, Latino, Hispanic, Chicano
• Parent or guardian of infant that was or is admitted to Oregon Health & Science University, Randall Children's Hospital, or Providence Health NICU in Portland, OR

Exclusion criteria

• Parent or guardian age less than 18 years old
• Preferred language other than English or Spanish (including if preferred communication is sign language)

Trial design

100 participants in 3 patient groups

African American and Black

Description:

One cohort includes families that identify as Black, African American, or African attending the racially concordant peer group sessions.

Treatment:

Behavioral: Participant guided peer support gathering

Latino English Preferred

Description:

One cohort includes families that identify as Latino, Hispanic, Chicano and language preference of English attending the ethnically concordant peer group sessions.

Treatment:

Behavioral: Participant guided peer support gathering

Latino Spanish preferred

Description:

One cohort includes families that identify as Latino, Hispanic, Chicano and language preference of Spanish attending the ethnically and linguistically concordant peer group sessions.

Treatment:

Behavioral: Participant guided peer support gathering