Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With NMD (CLASSIC)

Royal Brompton & Harefield NHS Foundation Trust

Status: Completed

Conditions: Neuromuscular Diseases; Neurological Diseases or Conditions

Treatments: Other: Semi-structured telephone questionnaire

Study type: Observational

Funder types: Other

Identifiers

NCT04581577

286495

Details and patient eligibility

About

This study aims to evaluate perceived clinical and psychosocial experiences of patients and their families during the Covid-19 pandemic. it is important to understand the implications of the pandemic for this population, particularly given its likely protracted course, and resultant limitations to daily activities and clinical care. This will help clinicians plan support and adaptations to the services they provide in the medium to long term.

Full description

As above

Enrollment: 40 patients

Sex: All

Ages: 16+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

Adult group

• Patient over 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
• Able and willing to provide informed consent

Paediatric group

• Parent of a patient under 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
• Able and willing to provide informed consent

Exclusion criteria

• Unwilling for telephone questionnaire to be audio-recorded

Trial design

40 participants in 2 patient groups

Adult patients with neuromuscular or neurological disorders

Description:

Telephone questionnaires administered directly to patients over 16 years of age with neuromuscular or neurological disorders

Treatment:

Other: Semi-structured telephone questionnaire

Parents of paediatric patients with neuromuscular or neurological disorders

Description:

Telephone questionnaires administered to the parents of patients over 16 years of age with neuromuscular or neurological disorders

Treatment:

Other: Semi-structured telephone questionnaire