Persons With Disabilities Generating Quality Metrics

Mass General Brigham

Status: Completed

Conditions: Physical Disability; Chronic Mental Disorder

Treatments: Other: Survey; Other: YESHealth

Study type: Interventional

Funder types: Other

Identifiers

NCT02390557

2014000899

Details and patient eligibility

About

No standard way exists to measure the quality of medical care or independent living long-term services and supports provided to persons with disabilities. This project will: provide a broader picture of how consumers with disabilities define care and care quality; measure the value of using consumers' expertise in developing, collecting, and assessing quality measures; and use this information to assist One Care providers in improving care delivered to their enrollees

Full description

The aims of the project are as follows:

1. To work with persons with significant physical disabilities and serious and persistent mental illness to develop two new approaches to assess quality of care:

   Approach #1: We will survey enrollees about their experiences in One Care and their thoughts about the care they receive. This survey will also ask One Care enrollees about how they manage their care and what self-direction means to them. The survey will be called the Persons with Disabilities Quality Survey (PDQ-S), and it will be available in English and Spanish versions.

   Approach #2: Enrollees in One Care will provide information about their perceptions of care quality to a trained team of persons with disabilities who will report the information to One Care care teams. The goal of the activity is to support quality improvement in One Care through hearing the consumer's voice. This is called YES Health - Your Experience: Speak up for better health care.

2. We want to test how providing consumer informed and consumer directed quality information to One Care providers affects One Care quality.

3. We want to improve the ability of One Care enrollees to manage their own health care and to recognize and report quality problems

Enrollment: 451 patients

Sex: All

Ages: 21 to 64 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• One Care enrollee
• Permanent physical disability and/or serious mental illness
• Seen at designated practice site
• English or Spanish speaking

Exclusion criteria

• Persons with an intellectual or a developmental disability

Trial design

Primary purpose: Health Services Research

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Double Blind

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451 participants in 3 patient groups

Control - Standard Practice

No Intervention group

Description:

Standard measures of quality at baseline. No intervention reports sent to providers

Survey

Experimental group

Description:

Persons with Disabilities Quality Survey.PDQS Survey Reports Intervention.reports sent to providers of OneCare enrollees

Treatment:

Other: Survey

YESHealth

Experimental group

Description:

Arm 3: YESHealth Reports and PDQS Survey Reports sent to providers of OneCare enrollees

Treatment:

Other: YESHealth

Other: Survey