Perspectives on Bone Marrow Donors Who Donate for Their Parent

Johns Hopkins Medicine

Status: Completed

Conditions: Bone Marrow Transplant

Treatments: Other: Semi-structured Interview

Study type: Observational

Funder types: Other

Identifiers

NCT03758911

IRB00111131 (Other Identifier)

2016-03p (Other Identifier)

J16127

Details and patient eligibility

About

The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.

Enrollment: 16 patients

Sex: All

Ages: 13+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months
• Willing to participate in mandatory audio recorded telephone interview
• Able to participate in interview without assistance
• Must be English speaking
• Transplant recipient (parent) must be living

Exclusion criteria

• Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)

Trial design

16 participants in 1 patient group

bone marrow/blood stem cell donors

Description:

Participants underwent a one time semi-structured telephone interview to understand the perspectives of bone marrow/stem cell donors experience, including how family dynamics impacted participants' decision to donate and identifying unique supportive care needs of bone marrow/stem cell donors.

Treatment:

Other: Semi-structured Interview