Physical Activity in Children With Inherited Cardiac Diseases

University Hospital Center (CHU)

Status: Completed

Conditions: Catecholaminergic Polymorphic Ventricular Tachycardia; Long QT Syndrome; Hypertrophic Cardiomyopathy; Dilated Cardiomyopathy; Brugada Syndrome

Study type: Observational

Funder types: Other

Identifiers

NCT04650009

RECHMPL20_0118

Details and patient eligibility

About

Use lay language.

Current guidelines regarding physical activity in patients with inherited arrhythmia and cardiomyopathy are mostly dedicated to adult patients, with a special focus on sports competition. Their application to the pediatric population has been scarcely evaluated.

Physical activity is well known for its health benefits but may be dangerous in this population, which leads to confusion within the medical community and among patients. Actual physical activity of children with such inherited cardiac disorders is unknown.

This study aimed to assess the level of physical activity in children with inherited arrhythmia and cardiomyopathy, and the adherence to the current European guidelines on the subject. Secondary objectives aimed to assess through a qualitative analysis the impact of the disease on physical activity and daily life in this population.

The level of physical activity and adherence to current guidelines will be determined from interviews between the patient and the principal investigator. Each patient will be questioned in order to explore the experiences, motivations and feelings of participants regarding physical activity. The standardized questionnaire was created by the principal investigator and members of the clinical research team.

The investigators believe that many children practice physical activity outside the current guidelines and hope to identify the main determinants of physical activity in this population.

Enrollment: 28 patients

Sex: All

Ages: 6 to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

Children from 6 to 18 years old with clinical and/or genetic diagnosis of :

• Long QT syndrome
• Brugada syndrome
• Catecholaminergic polymorphic ventricular tachycardia
• Hypertrophic cardiomyopathy
• Dilated cardiomyopathy
• Arrythmogenic right ventricular cardiomyopathy

Exclusion criteria

• Presence of extra cardiac co-morbidity with motor or psychological repercussions hingering physical activity
• Refusal from children or parent to participate in the study