Physical Activity Level of Norwegian Boys with Duchenne Muscular Dystrophy

Haukeland University Hospital

Status

Completed

Conditions

Duchenne Muscular Dystrophy

Treatments

Behavioral: Physical activity registration

Study type

Observational

Funder types

Other

Identifiers

NCT03947112

2019/260

Details and patient eligibility

About

The aim of this population based study is to examine, quantify and describe physical activity level in Norwegian boys with DMD, and to compare the level of physical activity level between boys with DMD and age matched healthy boys. A co-project will validate ActiGraph accelerometry to measure physical activity in boys with DMD.

Full description

International guidelines recommend regular physical activity for boys with DMD, and participation in physical activity plays a key role in the management. Paradoxically, patients with severe neuromuscular disease like DMD, have considerable limitations to participate in such activities. Limitation may be muscle weakness, pain, fatigue, reduced mobility and overall function, and also limited knowledge of physical activity benefits among health care personnel. Limited participation leads to a sedentary lifestyle, and gradual under-use of still functioning muscles may cause secondary deterioration in DMD.

The current physical activity level amongst Norwegian DMD's are unknown, and physical activity registration and self-reported questionnaire will be examined in this study.

Enrollment

28 patients

Sex

Male

Ages

6 to 18 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Boys with conclusive diagnosis of Duchenne Muscular disease, attending Norwegian pediatric rehabilitation clinics.
Signed written consent
Able to answer questionnaires with help from parents, care giver(s) or health care professional with regular follow up of the participants.

Exclusion criteria